Lipodystrophy United

Welcome from ENDO 2026

Thanks for scanning. Take what helps, share what matters.

Download our brochures and mental health resource, sign up for community news, and learn more about the upcoming Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting with the FDA.

Save the Date

EL-PFDD Meeting with the FDA

Date
Sept 11, 2026
Time
9:00 AM ET
Location
Alexandria, VA
Format
In-person + Virtual
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September 11, 2026 · 9:00 AM ET

Take these with you

Resources to download.

Free PDFs you can read now or share with your clinic, family, or community.

Could Your Patient Have Lipodystrophy? cover preview

For clinicians

Could Your Patient Have Lipodystrophy?

A clinician-focused brochure on recognizing lipodystrophy and avoiding missed diagnoses. Share with colleagues to help catch cases that are too often overlooked.

DownloadOpen
A Patient's Guide to Lipodystrophy cover preview

For patients & families

A Patient's Guide to Lipodystrophy

This guide is here to help you get an understanding of lipodystrophy and what to expect. Take your time going through it — there is no rush.

DownloadOpen
Mental Health Resource cover preview

Mental health

Mental Health Resource

Support and guidance for the emotional and mental health impact of living with lipodystrophy — for patients and the people who care for them.

DownloadOpen

Stay connected

Get news from Lipodystrophy United.

Sign up for updates about the EL-PFDD meeting, new resources, and community events.

Lipodystrophy United

Visit the full Lipodystrophy United website.

Learn more about our community, programs, research initiatives, and how to get involved.

lipodystrophyunited.org

Our community

United by lipodystrophy.

Lipodystrophy United community gathering
Community members forming the L sign
Community portrait
Community dinner
Voices of lipodystrophy